My lower back is permanently damaged because of an industrial injury that I had when I was around 20 years old, followed by a disc removal in my lumbar region. Over the decades that injury and surgery have often left me incapacitated and practically immobilized at times. The pain spikes up to a 10 at times although if I lie still it’s manageable. Dare I try to move and I get gut wrenching debilitating pain spikes. In 2002 I was diagnosed with kidney cell cancer so a surgeon removed my left kidney leaving a 14 inch scar from my abdomen in front to close to my spine at the back. Gladly, the cancer had not metastasized and I’m cancer free 16 years later. The pain from the surgery, however, has not abated much and it has joined up with the pain from my disc surgery and injury to create a crazy nexus of pain on my left side from my hip to my upper thoracic area. Joining this happy little pain scenario is a B12 deficiency that has left me feeling constantly hung over and exhausted. Add to that a couple of other injuries to my right knee and both shoulders makes life very interesting. So, what have I done about this and what can I do now about this?
Through all of this I’ve tried to maintain some normalcy in my life. At times it was impossible and I had to take months off of work on three occasions. Now that I’m retired I can’t take time off anymore! Such a drag.
Over the years, I’ve tried a number of ways of dealing with my back pain and I’ve had scores of very well meaning people suggest ways that they’ve tried and found effective in dealing with back pain including any number of varieties of physiotherapy, exercise, massage, acupuncture, yoga, meds, diet, etc., etc., etc. I have availed myself of most of the remedies recommended. Nothing seems to work for any length of time although I have gotten stretches of pain-reduced time over the years and I have been able to paint, sculpt (even using a chainsaw), printmake and putter in my shop. I cherish those times, and I want them back.
A couple of days ago, we (my family and I) attended my mother’s funeral in Maillardville. Before leaving my daughter’s home in Vancouver to go to the church for the ceremony I thought I would reach down and tie my shoes. Big mistake. That triggered a pain reaction in my back that almost had me passing out. The ceremonies at the church and later at the cemetery were very difficult because of the pain, never mind the grief. Yesterday, I drove home and although I was not entirely pain free, I was more or less comfortable. That’s the way this pain syndrome works. It comes and goes. This morning I did a stupid thing again. I tried to tie my shoes. Not too bright, this old man. I was aiming to go with Carolyn to walk the dog. Instead, I lay on the couch hopped up on T3s. I’ve got some pain relief right now and can sit and type this on my computer, but I have no idea how long this will last. Tomorrow, I call my M.D. I doubt he can do anything, but maybe prescribe some more T3s. I see a neurologist at the end of February. I hope he will be able to help me with the pain, the exhaustion, the dizziness, etc.
I tell you this not because I want sympathy. Maybe a little understanding would be good, but that can only come with knowledge. Hence this blog post. One problem is that most of the time I look pretty normal and healthy. People assume that I am and I don’t blame them. I do, however, find it a little frustrating when people ask me how I’m feeling. I don’t know what to say. It’s complicated. I have normal blood pressure, my pulse is good. In fact all my vital signs are good. I’ve just had an MRI that told me that my brain is in pretty good shape. So, yeah, it’s complicated. It might be good for those of us who experience debilitating pain to have a gauge implanted under the skin of our forearms indicating the level of pain we are experiencing at any given moment. I’m joking, of course, but…
Being at my mother’s funeral a couple of days ago was sobering to say the least. I couldn’t help but think about my own mortality and morbidity. My eldest sister is 82, almost 83 years old. She’s in good shape and could easily live well into her 90s. Most of my siblings are in good shape although MS and other autoimmune issues run in the family and I expect most of us will live long lives. It’s in our genes. But my parents’ generation is almost all gone. It’s our turn now to leave this mortal coil, and we will, one after the other, it’s just a matter of time.
More about my take on life and death in my next post coming soon.